HDinHD: Open Source Science for the HD Research Community
The goal of HDinHD is to foster and support a collaborative community united in its drive to accelerate the development of therapeutics that will delay the onset and/or ameliorate the effects of Huntington’s disease. HDinHD seeks to achieve this through:
- Sharing HD-related primary scientific data
- Sharing analyses and computational models built from HD-related scientific data
- Providing browsing and data interrogation tools over both primary and analyzed data that facilitate data exploration and hypothesis generation
- Building a forum for HD researchers to highlight their data, tools, know-how and insight to the community
The HDinHD website – founded as a partnership between CHDI and the Coppola Lab at UCLA – is currently a joint development effort by CHDI, Bridlewood Consulting and Rancho BioSciences. As you will see when you Register for access, HDinHD highlights data and tools provided by the broader community. If you are interested in Contributing Data to HDinHD, suggest links to other HD-related scientific data or websites, or would otherwise like to provide Feedback to us, we encourage you to do so. HDinHD is for the community; please help us tailor and grow HDinHD in a direction that can make a difference to your research, and ultimately, to improve the lives of HD families.
Want to learn more about HDinHD?
| Watch a detailed video overview of HDinHD presented at the 16th Annual HD Therapeutics Conference (April 2021). The video outlines data resources and tools within HDinHD and provides a detailed demonstration of the new HD Explorer tool. |
Read the following publication introducing HDinHD: HDinHD: A Rich Data Portal for Huntington’s Disease Research, J Huntingtons Dis., 10, 405-412
Latest news and publications from around the HD Ecosystem
HDBuzz
- Skyhawk Shares A Closer Look at SKY-0515 Data, Plus A Peek At Expanding US Trial Access
- June 2026: This Month in Huntington’s Disease Research
- Precision Pruning with PROTACs: Selective Targeting of Toxic Huntingtin
- Your DNA Shouldn’t Cost You Your Insurance: What HD Families Need to Know
- The Other Shoe Drops: uniQure Shares Plans To Submit Licensing Application With The FDA for AMT-130
Literature
- Development and validation of a machine learning model to detect psychiatric symptoms in Huntington's disease using speech analysis
- Topological modeling of gene expression in the brain with Huntington's disease reveals selective disruption of co-expression network
- Childhood to Adult Neurodevelopment in Gene-Expanded Huntington's Disease (ChANGE-HD): A prospective longitudinal neurodevelopmental study of Huntington's disease
- Progressive Huntington's disease with neuropsychiatric predominance across fragmented care settings
- Effect of Deuterated Drugs on Safety: Insights from Pharmacovigilance Data Analysis
News
- Bethany Ann Haight Obituary (2026) - Flushing, MI - Caterer Family Funeral Home (formerly Rossell)
- GH Reveals Britt Never Had Huntington's Disease - Soap Opera Digest
- A Wireless Antenna Smaller Than a Millimeter Could Expand Options for Brain Implants
- Neurocrine Biosciences: Why I Am Upholding A Buy Rating After M&A Deal For Soleno
- 'Woody Sez' Returns to Edinburgh Fringe Celebrating the Life and Legacy of Folk Legend ...




