HDinHD: Open Source Science for the HD Research Community
The goal of HDinHD is to foster and support a collaborative community united in its drive to accelerate the development of therapeutics that will delay the onset and/or ameliorate the effects of Huntington’s disease. HDinHD seeks to achieve this through:
- Sharing HD-related primary scientific data
- Sharing analyses and computational models built from HD-related scientific data
- Providing browsing and data interrogation tools over both primary and analyzed data that facilitate data exploration and hypothesis generation
- Building a forum for HD researchers to highlight their data, tools, know-how and insight to the community
The HDinHD website – founded as a partnership between CHDI and the Coppola Lab at UCLA – is currently a joint development effort by CHDI, Bridlewood Consulting and Rancho BioSciences. As you will see when you Register for access, HDinHD highlights data and tools provided by the broader community. If you are interested in Contributing Data to HDinHD, suggest links to other HD-related scientific data or websites, or would otherwise like to provide Feedback to us, we encourage you to do so. HDinHD is for the community; please help us tailor and grow HDinHD in a direction that can make a difference to your research, and ultimately, to improve the lives of HD families.
Want to learn more about HDinHD?
| Watch a detailed video overview of HDinHD presented at the 16th Annual HD Therapeutics Conference (April 2021). The video outlines data resources and tools within HDinHD and provides a detailed demonstration of the new HD Explorer tool. |
Read the following publication introducing HDinHD: HDinHD: A Rich Data Portal for Huntington’s Disease Research, J Huntingtons Dis., 10, 405-412
Latest news and publications from around the HD Ecosystem
HDBuzz
- April 2026: This Month in Huntington’s Disease Research
- The Number on the Scale: What the TFC Score Measures, and Why It Matters Right Now
- Dancing With a Stranger: Understanding Apathy in Huntington’s Disease Through Caregivers
- Fund the Buzz: The $8,000 Reason HDBuzz Can Tell You the Truth
- Cutting to the chase with CRISPR
Literature
- Huntington s disease - overview
- 'It's more than just irritability': perspectives and experiences of irritability among people affected by Huntington's disease
- MMP9 as a shared immune-related gene in Alzheimer's and Huntington's diseases: a cross-tissue transcriptomic analysis
- Longitudinal trajectories of apathy in Huntington's disease: a 6-year follow-up study
- Relapsing-remitting multiple sclerosis in a patient with Huntington's disease
News
- uniQure Announces Successful UK MHRA Pre-Submission Meeting for AMT-130 in ...
- Teva makes its first M&A play in years, buying Emalex - pharmaphorum
- AMT-130 Huntington's gene therapy nears UK filing for uniQure (NASDAQ: QURE) - Stock Titan
- uniQure plans UK filing for Huntington's gene therapy AMT-130 - Investing.com
- uniQure plans UK AMT-130 filing in Q3 2026 - QURE - Stock Titan




