HDinHD: Open Source Science for the HD Research Community
The goal of HDinHD is to foster and support a collaborative community united in its drive to accelerate the development of therapeutics that will delay the onset and/or ameliorate the effects of Huntington’s disease. HDinHD seeks to achieve this through:
- Sharing HD-related primary scientific data
- Sharing analyses and computational models built from HD-related scientific data
- Providing browsing and data interrogation tools over both primary and analyzed data that facilitate data exploration and hypothesis generation
- Building a forum for HD researchers to highlight their data, tools, know-how and insight to the community
The HDinHD website is currently a joint development effort by CHDI and UCLA, through the laboratory of Dr. Giovanni Coppola. As you will see when you Register for access, HDinHD highlights data and tools provided by the broader community. If you are interested in Contributing Data to HDinHD, suggest links to other HD-related scientific data or websites, or would otherwise like to provide Feedback to us, we encourage you to do so. HDinHD is for the community; please help us tailor and grow HDinHD in a direction that can make a difference to your research, and ultimately, to improve the lives of HD families.
Want to learn more about HDinHD?
Watch a detailed video overview of HDinHD presented at the 16th Annual HD Therapeutics Conference (April 2021). The video outlines data resources and tools within HDinHD and provides a detailed demonstration of the new HD Explorer tool. |
Read the following publication introducing HDinHD: HDinHD: A Rich Data Portal for Huntington’s Disease Research, J Huntingtons Dis., 10, 405-412
Latest news and publications from around the HD Ecosystem
HDBuzz
- Decoding apathy in Huntington’s disease: a new lens on motivation and decision-making
- 2024: Year in Review
- 2024 HDBuzz Prize: A NEAT new dance partner for Huntingtin
- Beta-blockers associated with delayed onset and decreased progression of Huntington’s disease
- Moving into the Fast Lane: uniQure and the FDA Are on the Same Track for Accelerated Approval
Literature
- Sigma 1 Receptor and Its Pivotal Role in Neurological Disorders
- In Vivo Nanodiamond Quantum Sensing of Free Radicals in Caenorhabditis elegans Models
- Foreign Contaminants Target Brain Health
- Disease-Specific Speech Movement Characteristics of the Tongue and Jaw
- Total functioning capacity scale in Huntington's disease: natural course over time
News
- Brain Changes Emerge Decades Before Huntington's Diagnosis - MedPage Today
- CMS unveils the next 15 drugs subject to government price negotiations - Healthcare Brew
- Brain changes related to Huntington's evident on imaging decades before symptoms emerge
- New findings shed light on cause of Huntington's disease progression | Fierce Biotech
- 15 More Drugs Chosen for Medicare Price Negotiations - ACHI